Jan. 31 2012
Source Page: End of Life Care Strategy: Third Annual Report. 82 p.Found: End of Life Care Strategy: Third Annual Report. 82 p.
Asked by: George Howarth (Labour - Knowsley)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, if she will make an assessment of the implications for her policies of the report by Together for Short Lives entitled The deep disparity in NHS funding for children who need hospice care, published on 13 December 2023.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
The Government recognises that access to high-quality, palliative and end of life care can make all the difference to individuals and their loved ones. The commissioning of children and young people’s palliative and end of life care services is the statutory duty of integrated care boards (ICBs). ICBs must commission palliative and end of life care services in response to the needs of their population, provided by a range of local organisations with the experience and skills to meet those needs.
Whilst the majority of palliative and end of life care is provided by National Health Service staff and services, we recognise the vital part that voluntary sector organisations, including hospices, also play in providing support to people at end of life and their families. Most hospices are charitable, independent organisations which receive some statutory funding for providing NHS services. The amount of funding hospices receive is dependent on many factors, including what other statutory services are available within the ICB footprint. Charitable hospices are autonomous organisations that provide a range of services which go beyond that which statutory services are legally required to provide. Consequently, the funding arrangements reflect this.
Due to the way the hospice movement organically grew, hospice locations were largely not planned with geographic or demographic purposes as a driving force. Therefore, there are inequalities with access to hospice services, especially for those living in rural or socio-economically deprived areas. It is therefore vital that hospices and statutory services work together to provide ensure their populations have access to palliative and end of life care when they need it.
At a national level, in line with the NHS Long Term Plan commitment, NHS England (NHSE) has provided circa £12 million match-funding to participating ICBs (and formerly clinical commissioning groups) between 2020/21 and 2023/24 which committed to invest in children and young people’s palliative and end of life care, including children and young people’s hospices, giving a total investment of £24 million. In addition, NHSE supports palliative and end of life care for children and young people through the Children and Young People’s Hospice Grant. NHSE has confirmed that it will be renewing the grant for 2024/25, once again allocating £25 million grant funding for children’s hospices using the same prevalence-based allocation approach as in 2022/23 and 2023/24. This prevalence-based approach ensures funding matches local need.
NHSE’s palliative and end of life care team has recently engaged with 24 ICBs to understand how to better support commissioners and has also reviewed all 42 ICB Joint Forward Plans for their inclusion of palliative and end of life care, with 69% of those plans making a specific mention. Further analysis is ongoing, but the intention is to use this information to help shape and focus support to ICBs.
Palliative and end of life care has been added to the agenda for Regional Quality and Performance meetings. Additionally, NHSE has commissioned the development of a palliative and end of life care dashboard, which brings together all relevant local data in one place. The dashboard helps commissioners understand the palliative and end of life care needs of those their local population, including the ability to filter the available information, such as by deprivation or ethnicity, thereby, enabling ICBs to put plans in place to address and track the improvement of health inequalities.
Asked by: Rachael Maskell (Labour (Co-op) - York Central)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what discussions she has had with (a) clinicians, (b) hospice leaders and (c) academics on future funding requirements for hospice and end of life care.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
Integrated care boards (ICBs) are responsible for determining the level of locally available, National Health Service funded palliative and end of life care, including hospice care. ICBs are responsible for ensuring that the services they commission meet the needs of their local population.
The majority of palliative and end of life care is provided by NHS staff and services. However, we also recognise the vital part that voluntary sector organisations, including hospices, play in providing support to people at end of life, and their families. Most hospices are charitable, independent organisations which receive some statutory funding for providing NHS services. The amount of funding hospices receive is dependent on many factors, including what other statutory services are available within the ICB footprint. Charitable hospices provide a range of services which go beyond that which statutory services are legally required to provide. Consequently, the funding arrangements reflect this.
In July 2022, NHS England published statutory guidance and service specifications for commissioners on palliative and end of life care, setting out the considerations for ICBs to meet their legal duties, and making clear reference to the importance of access to services.
The Department and NHS England, alongside key partners, will continue to proactively engage with our stakeholders, including the voluntary sector and independent hospices, on an ongoing basis, in order to understand the issues they face, including that of future funding pressures. The Department is in ongoing discussions with NHS England, including its National Clinical Director, about the oversight and accountability of National Health Service palliative and end of life care commissioning.
From April 2024, NHS England will include palliative and end of life care in the list of topics for its regular performance discussions between national and regional leads. These national meetings will provide an additional mechanism for supporting ICBs in continuing to improve palliative and end of life care for their local population.
NHS England has commissioned the development of a palliative and end of life care dashboard, which brings together relevant local data in one place. The dashboard helps commissioners understand the palliative and end of life care needs of those in their local population, enabling ICBs to put plans in place to address and track the improvement of health inequalities. Additionally, the National Institute for Health and Care Research has established a new Policy Research Unit to build an evidence base on palliative and end of life care, with a specific focus on inequalities.
Correspondence Mar. 22 2024
Committee: Health, Social Care and Sport CommitteeFound: Hospice UK NCS Stage 2 Letter from Hospice UK to the HSCS Convener concerning Stage 2 of the National
Asked by: Baroness Hodgson of Abinger (Conservative - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government what assessment they have made of the prospects of equitable access to hospice care for all children and young people who need palliative and end of life care in 2024.
Answered by Lord Markham - Parliamentary Under-Secretary (Department of Health and Social Care)
The Government recognises that access to high-quality, palliative and end of life care can make all the difference to individuals and their loved ones. Funding for children’s and young people’s palliative and end of life care is made available locally through integrated care boards (ICBs), which are responsible for commissioning services in response to the needs of their local population.
In addition, NHS England has confirmed that it will be renewing the Children and Young People’s hospice grant for 2024/25, once again allocating £25 million grant funding for children’s hospices. NHS England is reprioritising budgets for 2024/25, in light of the revised assessment of financial position and, whilst it is holding funding aside for the children and young people’s hospice sector, it cannot confirm further details, including the distribution mechanism, until 2024/25 financial planning is concluded.
Children and young people’s palliative and end of life care is provided by a range of services and providers from across the statutory and voluntary, community and social enterprise sectors. The majority of palliative and end of life care is provided by National Health Service staff and services, but we recognise that the voluntary sector organisations, including hospices, also play a very vital part in providing support to people at end of life and their loved ones.
The Government has not made a direct assessment of the prospects of equitable access to hospice care for all children and young people who need palliative and end of life care in 2024. However, NHS England’s palliative and end of life care team has recently engaged with 24 ICBs to understand how to better support commissioners and has also reviewed all 42 ICB Joint Forward Plans for their inclusion of palliative and end of life care, with 69% making a specific mention. Further analysis is ongoing, but the intention is to use this to help shape and focus support to ICBs.
Special Report May. 09 2024
Committee: Health and Social Care Committee (Department: Department of Health and Social Care)Found: Special Report - Assisted Dying/Assisted Suicide: Government Response to the Committee's Second Report of
Found: End of Life Care Project . 31 members, 4 MSPs in attendance. 15 December 2022 New Research Mind
Asked by: Lisa Nandy (Labour - Wigan)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what recent assessment she has made of the adequacy of her Department's funding for (a) hospices in the North West and (b) Wigan & Leigh Hospice.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
Integrated care boards (ICBs) are responsible for determining the level of locally available, National Health Service-funded palliative and end of life care, including hospice care. ICBs are responsible for ensuring that the services they commission meet the needs of their local population.
The majority of palliative and end of life care is provided by NHS staff and services. However, we also recognise the vital part that voluntary sector organisations, including hospices, play in providing support to people at end of life, and their families. Most hospices, including Wigan and Leigh Hospice, and many other hospices in the North West and the rest of England, are charitable, independent organisations which receive some statutory funding for providing NHS services. The amount of funding hospices receive is dependent on many factors, including what other statutory services are available within the ICB footprint. Charitable hospices provide a range of services which go beyond that which statutory services are legally required to provide. Consequently, the funding arrangements reflect this.
Asked by: Bill Wiggin (Conservative - North Herefordshire)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps her Department (a) is taking and (b) plans to take to ensure the long-term sustainability of the hospice sector.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
While no specific assessment has been made recently of the equity of funding provided to hospices across England or the sustainability of the funding model for hospices, there are several steps that the Department is taking to ensure the equity and sustainability of funding for hospices.
Integrated care boards (ICBs) are responsible for determining the level of National Health Service funded palliative and end of life care, including hospice care, locally, and they are responsible for ensuring that the services they commission meet the needs of their local population.
The majority of palliative and end of life care is provided by NHS staff and services. However, we also recognise the vital part that voluntary sector organisations, including hospices, play in providing support to people at end of life and their loved ones. Most hospices are charitable, independent organisations which receive some statutory funding for providing NHS services. Charitable hospices provide a range of services which go beyond that which statutory services are legally required to provide and, consequently, the funding arrangements reflect this.
NHS England has developed of a palliative and end of life care dashboard, which brings together all relevant local data in one place. The dashboard helps commissioners understand the palliative and end of life care needs of their local population, enabling ICBs to put plans in place to address and track the improvement of health inequalities and ensure that funding is distributed fairly based on prevalence.
At a national level, NHS England supports palliative and end of life care for children and young people through the Children and Young People’s hospice grant. It has confirmed that it will be renewing the grant for 2024/25, once again allocating £25 million of grant funding for children’s hospices using the same prevalence-based allocation approach as in 2022/23 and 2023/24.
The Department recognises that one of the keys to ensuring the long-term sustainability of the hospice sector is to ensure that it can maintain a sufficient workforce. The Government have also provided additional funding to help deliver the one-off payments to eligible staff employed by non-NHS organisations, which employ their staff on dynamically linked Agenda for Change contracts. Organisations were able to apply for the funding and needed to show they had been negatively financially impacted by the pay deal, and that their staff are employed on dynamically linked Agenda for Change contracts.
Asked by: Rachael Maskell (Labour (Co-op) - York Central)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what recent assessment she has made of the adequacy of her Department's funding of (a) hospices and (b) St Leonard's Hospice in York.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
Integrated care boards (ICBs) are responsible for determining the level of National Health Service funded palliative and end of life care, including hospice care, locally, and are responsible for ensuring that the services they commission meet the needs of their local population. As part of the Health and Care Act 2022, the Government added palliative care services to the list of services an ICB must commission, which will ensure a more consistent national approach and support commissioners in prioritising palliative and end of life care.
The majority of palliative and end of life care is provided by NHS staff and services. However, we also recognise the vital part that voluntary sector organisations, including hospices, play in providing support to people at end of life and their families. Most hospices, including St Leonard’s Hospice, are charitable, independent organisations which receive some statutory funding for providing NHS services. The amount of funding hospices receive is dependent on many factors, including what other statutory services are available within the ICB footprint. Charitable hospices provide a range of services which go beyond that which statutory services are legally required to provide and, consequently, the funding arrangements reflect this.